Welcome to Rare Diseases Network 's website. Rare Diseases Network is a no profit effort with beneficial to the public and charitable character. We wish collaboration with the all relevant teams or organisms to achievement of our aims.

Network 's aims are :

Collecting and sorting all informations that concern the Rare Diseases (Disease definition, Reasearch Centres, Treatment & Care Centres, Supporting Groups) and developing of Rare Diseases list. The informations will be published in the internet, and if it is possible they will be published in printed form and will be freely available in everyone who is interested.

Continuous follow-up of developments in the Rare DIseases field and continuous renewal of the informations (internet & printed form).

The improvement of treatment and care conditions of persons that suffers from a Rare Disease with the creation of core of volunteers that will work to this direction.

The economic and moral support of families that have direct need.

The promotion of scientific research and collaboration for the increase of knowledge of pathogenicity and prevention of pathological situations that is caused by Rare Diseases.

The promotion of sensitization of public with the creation of a communication forum between experienced researchers, advising immediately but also through other real organisations and promoting rhe public financing to aid those aims.