The Rare Diseases Network is a private initiative. It is not speculative character, that means that members can register completely free and they can enjoy all that for which the Network was created.

The reasons that the Network is created for are:

• To collect as much information about the Rare Diseases and the creation of an information base in wiki so the Network members and all Network  ‘s website visitors.can use to get information and any kind of help
• To inform the members about events (speeches, seminars etc) regarding Rare Diseases. As well about any new scientific developments in considering the Rare Diseases.
• To provide to the members a way (place) to express themselves via the website ‘s forum. Where the members can express their problems, their agony, their questioning.
• The creation of a core of persons that experience the living with a Rare Disease, that will be capable to provide information, help or support to those who might need it, to improve the quality of their lives, his/her own and his/her family.

The network is attend to all persons that suffer directly or indirectly from a Rare Disease somehow. No matter his/her  nationality and or place of living. There for the  website is  written in two languages (Greek & English).

he Network  ‘s founder of and website ‘s administrator is not a scientist or a doctor, simply suffering from a Rare Disease (Wilson disease - first diagnosis or Juvenile Parkinson disease - last diagnosis).

The texts are collected and processed after research in the internet, therefore  we do not claim any type of intellectually right, also the sources of texts are mentioning in their end.

The Network ‘s course and  development dependents clearly and exclusively from its members.

Periklis Tsioutsios